coffee break

walking past the trail

the bridge

shooting Eva

 

Η καθημερινότητα με τον λύκο

"I am struggling today to get anything done. I am currently trying to get my laundry started. I've had to stop and come back to the washing machine three times just to get it going. The exhaustion and weakness in my muscles is unbearable today. So, I thought I would share what lupus fatigue can feel like ...

Lupus fatigue isn’t just being tired. It is so much more.

It’s an overwhelming, debilitating exhaustion that rest doesn’t fix. Sleep doesn’t reset it. Naps don’t cure it. You can do everything right and still wake up feeling like you never slept at all.

Some days it feels like having the flu — your body heavy, your muscles weak, your head foggy. Simple, everyday activities like showering, getting dressed, or making a meal can feel impossible. Not because you don’t want to do them … but because your body simply doesn’t have the energy to give.

This kind of fatigue goes deeper than the body. It affects your mind, too. It can make it hard to concentrate, remember things, or even find the right words. Conversations can feel draining. Decisions feel overwhelming. Even minimal activity can wipe you out completely, leaving you unable to function for hours — or days.

Lupus fatigue is disproportionate to effort.

A short shower can feel like running a marathon.

Folding laundry can feel like lifting weights.

Making it through the day can feel like survival.

And the hardest part?

It’s invisible.

From the outside, you may look “fine.”

Inside, your battery is sitting at 10%, or completely empty. Can you imagine living every day with 10% of the energy most everyone has for their day?

This exhaustion impacts every part of life. It can mean missing work, canceling plans, skipping social events, and struggling with basic chores. It’s the constant awareness that your energy is limited, and once it’s gone, there’s no pushing through. Yes, there is a point of no pushing through. It is an exhaustion where you have nothing left to give.

This is what makes lupus fatigue different from normal tiredness. Normal tiredness is relieved by rest. Lupus fatigue is constant, severe, and often unrelated to how much you’ve done. It’s one of the most disabling symptoms of lupus, and one of the least understood.

If you live with this, please know:

You are not lazy.

You are not weak.

You are not imagining it.

You are navigating life with a body that is fighting itself every single day.

Every day is different, but every day brings battles.

And you still show up in every way that you can, and that makes you a warrior."

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